PATIENT SUPPORT PROGRAM SUPPORT FOR THE DEVELOPMENT AND ASSESSMENT OF PATIENT SUPPORT PROGRAMS AND ADAPTATION OF THE PATIENT WITH MULTIPLE SCLEROSIS
The care and management of the treatment process for patients with Multiple Sclerosis require the care systems to innovate their services and practices through a more effective recognition of the unmet needs of these patients. This, together with the promotion of their full engagement towards a conscious management and in first person of the illness and of the impacts on the daily life that it involves.
The scientific literature demonstrates how the "Patient Support Programs" (PSP), if effectively adapted to the patient's needs and specific needs, have a positive effect both on clinical outcomes (eg: therapeutic adherence) and on psychosocial outcomes ( ex: quality of life, adaptation to the disease, patient engagement, caregiver engagement, self efficacy).
In 2018-19, Merck Serono is developing, with the scientific supervision of EngageMinds Hub, a research and consultancy project aimed at designing an intervention dedicated to patients with Multiple Sclerosis.
The ultimate goal of the project is to offer technological support to improve the quality of life of people with Multiple Sclerosis, offering them a service for more effective management of the disease in terms of therapeutic adherence but also the possibility of playing an active role and aware of their care and assistance pathway.
LEAD RESEARCHER: Guendalina Graffigna
TEAM: Serena Barello
DURATION: Dicembre 2018 - ongoing